Congenital Heart Disease

Congenital heart disease (CHD) occurs at birth and occurs when there is abnormal heart development before birth. CHD can describe a number of different problems affecting the heart and is the most common type of birth defect. About one in 125 children is born with congenital heart disease CHD and, until quite recently, most patients died in infancy or childhood. New surgical techniques, interventional cardiology and better medical therapy have been so successful that now over 85 per cent of patients with CHD reach adulthood. For the first time, the number of adults with CHD equals the number of children with the disorder.

Congenital Heart Disease Services + Programs

The Pacific Adult Congenital Heart Disease (PACH)  Clinic in the Heart Centre at St. Paul’s Hospital, cares for patients born with heart defects who have reached adulthood. It is the only adult congenital heart clinic in BC. A team approach to care is provided by pediatric and adult cardiologists and surgeons, specialists and other allied staff (nurses, social worker and psychologist). The PACH Clinic provides a range of outpatient and inpatient services for adults with congenital heart disease. These services may include management of arrhythmia, heart failure, or pregnancy or treatments such as electrophysiology, heart catherization, interventional procedures, heart surgery or transplant.

Other Congenital Heart Disease Resources + Organizations

Heart & Soul: A guide to congenital heart disease
Heart & Soul is a handbook published by the Heart and Stroke Foundation containing in-depth information about congenital heart defects in children.

Canadian Congenital Heart Alliance

Canadian Adult Congenital Heart Network

Adults with Congenital Heart Disease, American Heart Association

Adult Congenital Heart Association

International Society for Adult Congenital Heart Disease

Congenital Heart Information Network